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severe migrains


Guest ben zoe

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Guest ben zoe

I have tried everything under the sun for my migraine as trivial as topomax doc. Prescribed butibital and FIOROSET.WITH LITTLE OR NO RESULTS. I have run the gambit of opioid analgesics. The only one that worked is illegal everywhere so that can't be a long term med. What has worked to my amazement is botox . it can only be prescribed by a doc but without insurance it is very expensive and has to be repeated monthly but it will cost so much $$ but that is only my personal experience. I have from these horrid migraine for so long I'd like to here what others have experienced. Thanx Ben zoe

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Headaches.  I have been fighting migraines, ice-picks, and cluster headaches (a complete misnomer....they are headaches in that labor pains are tummy aches).  I'm basically a neurological mess.  My neurologist is fantastic and has worked with me for a number of years and we've finally stumbled on a mixture that works for me most of the time.  

Sumatriptan is a vaso-dilator (spelling?...I mean, it shrinks the blood vessels) and stadol nose spray.  Stadol itself is the brand name and isn't really made anymore, but it's easier to say than Butorphanal Tartrate and is still known by most doctors as Stadol.  Stadol is a narcotic but, for me anyway, it doesn't feel like one.  I use it and the pain goes away...end of story.

since Congress has started targeting doctors who prescribe narcotics, you'll find it difficult in the U.S. To find one who help you.  Good luck!

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I've actually tried stadol b4 and I was puking for about 3 days. This was actually the first opiate I have ever tried and I thought I was gonna die I'm glad it works for you though. I have not seen In a few years though actuall about 15 years. I used to give it to my friend wen he was sick but after my experience I was scared of it myself. If you have not tried botox I would at consider it . I went from 5 to 6 migraine headaches a day to none . but if it works don't fix it

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Opiates and Bulbital plus lots of sleep will eventually kick them for me. Tordol IV at ER was great one time - until I realized the next day I was allergic. That was god awful, I won't touch that crap with a ten foot pole now. I seriously think there is a link between women who have been on birth control for years and migraines. I never ever used to get them till after years of BC use and they have only gotten worse in time. 

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I have had them since I was 11 years old and they have gotten worse over the years.  We have tried all kinds of preventative meds as well as abortive and pain meds. Currently I average 3 debilitating headaches a week which means I am pulling out the abortive and pain meds and hoping I have caught it in time.  ( I usually have a 20 min window to catch it.)  Over the years I have seen a bunch of different neurologists but we haven't had much luck preventing them, so its now about pain mgmt.  Unfortunately, most everyone here knows how Dr's hands continuously get tied tighter in their ability to assist us.  So I supplement as needed.  Someone mentioned botox..  That is in my future, as soon as we can convince insurance that it's necessary... 

At least the sumitriptan and pain meds work eventually for me.. most of the time.  I just sometimes lose several days of work.  Needless to say, that doesn't go over well at the job.

In my family, there is definitely a link, as all my siblings get them. Both my parents and my maternal grandmother and great-grandmother got them, and sadly, I have passed this lovely trait on to both of my kids.

So for anyone who suffers from them, I can truly relate.  I can't begin to tell you how many birthdays, family get togethers, holidays, special events and just fun time with my kids that I missed over the years because of migraine.  

But every month, I go back to my doc because I have to believe that there will be a cure or, if not, something that will improve my quality of life. Until that day.. I will be here making sure that I am never without the supplement I need!

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I do a lot of research, I've had these migraines for about 25 years now. I am in bed, cold washcloth on my eyes, head throbbing like the worst hangover you every had, and throwing up, for 8 to 12 hours. Fiorinal with Codeine works best for me IF I am able to go to a dark bedroom and chill - it numbs it enough to be tolerable, if I don't throw up the pills as soon as I take them (usually 2 capsules every 4 hours.) Nothing else has any effect at all. Preventatives haven't worked, I've been to headache clinics in a couple of states.

And my doctor refuses to script me enough Fiorianal to last for the year. Even though I get zero buzz or euphoria from them (after having taken them for so long.) And I can't find them anywhere on the board here.

Could be worse of course, could be a lot of bad diseases, cancer, whatever, but when you have one it's hard to imagine it being worse!

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I will reply more to this when I have longer. I have had migraines since I was 10 years old!!!! I've tried everything. I still be them from time,to time so I know how bad they can be. laying down makes mine worse. if you can take a sleeping pill and sleep with ur head elevated that really helps!!!! everyone is different though

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Well, the good news is that supposedly migraine episodes decrease as we get olded. Hasn't happened for me yet though!

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relpax makes me throw up so it doesn't help. ahh nobody can relate to this pain unless they suffer as well.

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Guest ben zoe

I do a lot of research, I've had these migraines for about 25 years now. I am in bed, cold washcloth on my eyes, head throbbing like the worst hangover you every had, and throwing up, for 8 to 12 hours. Fiorinal with Codeine works best for me IF I am able to go to a dark bedroom and chill - it numbs it enough to be tolerable, if I don't throw up the pills as soon as I take them (usually 2 capsules every 4 hours.) Nothing else has any effect at all. Preventatives haven't worked, I've been to headache clinics in a couple of states.

And my doctor refuses to script me enough Fiorianal to last for the year. Even though I get zero buzz or euphoria from them (after having taken them for so long.) And I can't find them anywhere on the board here.

Could be worse of course, could be a lot of bad diseases, cancer, whatever, but when you have one it's hard to imagine it being worse!

thereis a place that will send them c.o.d. minus the codeen I found it here just look under the ones that still do c.o.d. they even remind you when it is time to refill

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I do a lot of research, I've had these migraines for about 25 years now. I am in bed, cold washcloth on my eyes, head throbbing like the worst hangover you every had, and throwing up, for 8 to 12 hours. Fiorinal with Codeine works best for me IF I am able to go to a dark bedroom and chill - it numbs it enough to be tolerable, if I don't throw up the pills as soon as I take them (usually 2 capsules every 4 hours.) Nothing else has any effect at all. Preventatives haven't worked, I've been to headache clinics in a couple of states.

And my doctor refuses to script me enough Fiorianal to last for the year. Even though I get zero buzz or euphoria from them (after having taken them for so long.) And I can't find them anywhere on the board here.

Could be worse of course, could be a lot of bad diseases, cancer, whatever, but when you have one it's hard to imagine it being worse!

thereis a place that will send them c.o.d. minus the codeen I found it here just look under the ones that still do c.o.d. they even remind you when it is time to refill

Well, I don't think they will work very will if they don't have the codeen in them.

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I have noticed I get them when I'm really stressed and/or PMSing. What a fab combo.

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